Wednesday, June 29, 2011

There's room for a little blue in the big pink sea

There is a little blue version of breast cancer and its name is John W. Nick. Ever heard of him? Me neither until I came across Genesis Davies' blog “Breast Cancer Awareness: Spare a Little Media for Men.”

Seems Nick had a daughter who made him a promise "the world would know that men get breast cancer too.” She established a foundation in his name, the John W. Nick Foundation. Ever heard of it?

Perhaps there are only a handful of people who know of the foundation simply because the disease affects only about 1 percent of the population. There are less than 2,000 new cases a year; and deaths are relatively low, about 400 annually in the United States.

But the size of an organization doesn’t have to mean that it remains non-existent – especially with social media. The John W. Nick Foundation has a website, Twitter account and a Facebook page, the latter of which seems to be fulfilling the true sense of social media – media for social interactions. Look at this post from May 19:
Angela Hill Weber My husband, a breast cancer survivor of 10 years, has recently been found to have metastasis. I am trying to find a doctor who is knowledgeable about male BC - anywhere in the U.S. I realize there are probably no male BC "specialists" - but I'd like to find somebody who has seen more than just one or two male breast cancer patients.
Can anyone on this page suggest a doctor for us?
That was 9:27 a.m., and by 9:32 a.m. She had an answer:

Erica Bowers-Bess Call MD Anderson Caner Center in Houston TX...713-792-2360. Dr. Sharon Giordano specializes in male breast cancer.
Angela Hill Weber Thank you, Erica! I have actually seen her name in conjunction with the (very few!) published articles on breast cancer, and your recommendation just sealed it. We're calling her! THANK YOU!
The foundation’s Facebook page has only 150 “Likes,” but it has started a conversation. Nick is not yet a household name, and it might never be. Not like Komen or Livestrong. But the foundation can have a strong presence, at a low cost, that will be meaningful to men battling breast cancer. And that’s the beauty of social media.

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